On Lake Como, Vanni Oddera meets Andreea in a story of rare resilience

Being a parent can become an even greater challenge when everyday life is marked by a rare disease. Vanni Oddera meets Andreea, known on social media as “rare mom,” who shares her life alongside her daughter Elena, affected by an extremely rare neurodegenerative disease. On Lake Como, between personal storytelling and a water-skiing experience, the strength of a mother emerges, facing every day with courage and turning difficulties into a testament of love, resilience and determination.

On Lake Como, Vanni Oddera meets Andreea in a story of rare resilience

Accessible video transcript

[00:00–00:10]

[Vanni Oddera and Andreea Porcilescu get into an Opel together with Andreea’s daughter. The car drives along scenic roads around the Como lake.]

[00:10]

Vanni: Andreea, two words to describe yourself.

[00:13]

Andreea: A rare mom.

[00:14]

Vanni: Why a rare mom?

[00:15]

Andreea: Because for 17 years I’ve been living with my daughter, who is rare—actually, unique.

[00:21]

Vanni: What does a typical day look like for you?

[00:22]

Andreea: My typical day basically revolves around medications, treatments, but not only that—also my other kids’ activities. So I’m always very active from morning to night.

[00:34]

Vanni: Andreea, what is life to you?

[00:36]

Andreea: It’s a wonderful journey.

[00:38]

Vanni: What’s your relationship with driving and traveling?

[00:40]

Andreea: We love traveling—it’s our lifestyle. We meet so many people, we have new experiences. I couldn’t not travel, so for us, it’s life.

[00:49]

Vanni: What’s your relationship with social media?

[00:51]

Andreea: Thanks to social media, I’ve met so many people, including people with disabilities, and some of them are able to travel. Nowadays, that’s amazing—not having limits when it comes to driving.

[01:02]

Vanni: You brought me here—now are you ready to take on the challenge?

[01:06]

Andreea: I’m ready every single day, so yes.

[01:07–01:27]

[Andreea, Vanni, and her daughter get out of the car and get onto a boat on the lake. Then Andreea and Vanni go water skiing together. Andreea later returns to the boat and kisses her daughter. Finally, the car is seen setting off again.]